We are a group of parents that want to share their knowledge and their experiences with other parents of brain injured children.

Our reviews try to be the most accurate, precise and objective, like an observational study should be done.
We write here our own experiences with Dr. Gunvant Oswal's G-Therapy in the hope that someday, these will be useful for other needy people and give them the hope they need to face their disease.

SSPE EVIDENCE CASE 2: CRISTIANO - 6 YEARS OLD

My name is Valentina and I am the mother of three wonderful children: Mathias, now 13

years old, Edoardo, 10 years old and Christian of 8.

When Cristiano was 11 months old I took the measles and inevitably passed it on to

Cristiano, who still took the milk from my breast.

Unfortunately, he contracted it in a very violent form, in fact he was hospitalized for about

30 days. After this period our life continued normally.

Cristiano has always been a child who loved to be the center of attention. Educated,

meticulous and very good in every activity he was offered. At the age of three he started

swimming and at five he absolutely wanted to go and take piano lessons. He also attended

a judo course, in short, an explosion of energy.

At that time, my husband and I worked in the family business for which, my husband lived

mostly abroad and only returned the weekend, while I went out in the morning and came

back when it was evening. I spent little time with my children.

It was October 2015, when Cristiano's kindergarten teacher called me. She reminded me

that Cristiano had changed, very often he isolated himself, he went too close to the sheet

to draw, so he invited me to do some checks, thinking it was just a transitory period of

growth.

I immediately activated blood tests, examinations of sight, but nothing, it was always

negative.

At that time, however, I realized that Cristiano actually got tired very easily, and that when

he slept he had very little tremors.

I decided that it was appropriate to do an EEG and so I did. The examination turned out to

be all in the norm, only a small minor wave that was not given any importance.

One evening, in February 2016 I agreed that Cristiano was particularly strange, did not want to eat, so I measured the temperature and with great amazement I saw that he had a fever at 40. The next day he was fine again.

Life continued normally until an April 2016, morning. I was in the bathroom and I heard strange noises from the children's bedroom. I opened the door and saw that Cristiano was prey to an epileptic fit. I took him in my arms and began to shake him, but nothing was not

recovered. After about 5 minutes, he relaxed, but it was clear that he was not conscious. I

called the ambulance and admitted him to the Tivoli hospital where I live. A few days later

they made an MRI and saw that there was a slight damage to myelin.

From there the ordeal began.

The doctors thought of a neurodegenerative disease and started all the related checks.

They were really dramatic months. I could not quite believe that my son, a child so vital, so

perfect, could be affected by a disease that would slowly invalidate him. I remember that

the night I could not sleep anymore and I began to pray desperately. I wanted to disappear

from the world, not to feel nor see anything, but I could not, I had to fight for my son and

with my son, because this is the primal instinct of a mother, will never abandon his son in

difficulty. The exams continued to lead to no outcome.

Two months passed and in the month of June, Cristiano had a strange fever with a

temperature of 37 ° / 37.5 °, which even with paracetamol did not pass.

Two days later we always brought him back to the Bambin Gesù Hospital but this time he

was hospitalized.

The exams started.

Cristiano soon began to ambulate badly and a few days later did not hold up anymore.

The diagnosis came like a sword that pierced my heart. SSPE: Sub-acute Sclerosing

Parancephalitis from measles, the doctors told me with a unique coldness that my son was

destined to die soon.

It is useless to describe how I vented my despair, I do not even remember what I did.

After learning the news, my husband and I immediately asked what could be done, the

chances were non-existent, the only possible attempt could be a cure coming from

Germany. It was a question of inserting a tube into my son's head, through which he would

be given the interferon that would help slow the course of the disease. We agreed

immediately and we had to wait for the consent of the national health commission for 21

days, considering this an experimental cure. At that time he began to stop walking and not

to speak anymore. I remember with such sadness that he was crying that night and I did

not understand why, so he started to sing to his favourite lullaby, and he Cristiano, sang

with me, but at a certain point he looked at me with a scared look, he asked me for help ...

that moment he did not speak again. Cristiano was infusing Interferon once a week and his

condition was desperate. This is a very heavy therapy that brings fever and pain

everywhere. The situation did not improve at all. Neurologists now had no hope that he

could heal. They began to convince me that the best thing to do was to put him under

morphine. My husband and I did not want to ... we were hoping ... but after 5 days they did

everything to convince us, we gave up.

Cristiano went back to resuscitation, his condition was getting worse and worse. At that

time we witnessed an animated confrontation between the responsible neurologist and the

doctor of resuscitation. She was angry, asked explanations to this neurologist why the

administration of morphine in such massive doses. I remember I was surprised ... they had

assured me that the doses of morphine were very low ...

After that "confrontation" the doctor in charge of the resuscitation department asked me to

change the hospital ... and so we did. In three days, Cristiano was brought to Palidoro, a

detachment of the Child Jesus and was admitted to the intensive care unit. There a doctor,

Dr. Corbari, began studying the case of Cristiano. He changed therapy, removed the

morphine. The Palidoro was a different environment than the Gianicolo, there finally

breathed humanity, and even if the situation was dramatic, we felt like family, together to

try to win. In September 2016 Cristiano was taken to the neuro rehabilitation department

and on December 24th 2016 we were discharged. Precisely on the eve of our Lord Jesus

Christ birth. Cristiano was not well, ... obviously he was a little better than at the beginning of the illness but he was not at all well.

He remained fixed with his eyes and was practically inhuman ... devoid of any form of

vitality. One day, I do not remember what a month it was, I came across facebook, on

the article of a doctor who spoke about Cristiano's illness and specifically talked about a

13-year-old boy who had contracted this condition. There was the photo of this boy, and taken by curiosity, I went to scroll the facebook profile of this guy. I noticed, to my amazement, that in recent times this boy had made so much progress, and this because of a cure coming from India, the G-THERAPY the care developed after many years of study by Dr. Oswal.

I looked for as much information as possible, and with a very dear Indian missionary friend

of mine, we contacted Dr. Oswal, who immediately gave us his greatest availability. This

happened in August 2017.

In September 2017, Dr. Oswal received us, certainly after viewing all the documentation of Cristiano via e-mail and I had the opportunity not only to be able to compare with Dr. Oswal about the disease of Cristiano. In fact, unlike the Italian doctors as this is a very rare disease in Italy, Dr. Oswal is a great connoisseur of this disease and thanks to him I learned many aspects of this disease unknown to me.

Also, in his clinic, I had the opportunity to compare myself with other families of sick children.

I stayed in India for a week, after which I returned to Rome with the therapy for Cristiano and other children. In fact, Dr. Oswal, was concerned to send the therapy to other children,

two in Greece and two in Italy.

Christian began the G-THERAPY on September 14th 2017 and these are the EEGs of

July 2017, a month before the beginning of the G-THERAPY.

At that time Cristiano was totally enticed and the few times we tried to put him on the

pram, he could not stand his head and was impatient. He ate all the shakes and we had to feed him every bite, give him some water to force the food to swallow. After a few months of therapy, we noticed that the child was less listless and seemed to be a little more alert.

Today there are many improvements of Cristiano. Even giving him his hands, he is strong

on his legs and gets up.

He still does not have the balance to stand on his own.

Today Cristiano eats everything

solid, pasta, pizza, of course he still needs to be fed. He began to vocalize a lot and try to

produce words. Today Cristiano goes to school and is a completely different child since G-THERAPY started.

However, he continues to do the interferon, but every three months and the Italian neurologists have had to recognize the great improvements that Cristiano

has done to date and that we pray to God continue to do.

Today it is exactly 14 months and 3 days that Cristiano started taking the therapy of Dr. Oswal and me and my family will never stop thanking him and praying for him, because thanks to his studies, he gave us the greatest hope of our life, that of seeing our son improve from a disease considered lethal.

Below I enclose the EEG made in September 2018, the most recent.

Thanks Dr. Oswal, thank you for what you do, for your immense passion in giving hope to

desperate families, thanks for the great person that you are.

May God always bless you!

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