We are a group of parents that want to share their knowledge and their experiences with other parents of brain injured children.

Our reviews try to be the most accurate, precise and objective, like an observational study should be done.
We write here our own experiences with Dr. Gunvant Oswal's G-Therapy in the hope that someday, these will be useful for other needy people and give them the hope they need to face their disease.

SSPE EVIDENCE CASE 1: DOROTEA - 10 MONTHS OLD

Our daughter was born on February 2017.

She is our first baby and it was amazing and mesmerizing experience could have her into our life.

But probably, tiredness after delivery made my immunity system low, and, 40 days after delivery, I had measles. One week later, at 6 weeks of age, she had measles too.

We were very worried about risks and consequences of measles. But her measles was very weak, had just 1 day of light fever and then the typical skin rush. In 1 week she was good again and our life went on without any other problem.

She was happy, lively and grew up following the typical goals of her age.

But in January 2018, at 10 months of age, something went wrong. She started moaning and crying every time, not smiling anymore. She could not sleep anymore.

She was not able to standing anymore, nor to speak the words she had already learned. She was not able to stay seat anymore and her head often dropped down while she was playing.

We understood that something wrong was happening but her pediatrician said that was nothing to worry about. But when she was completely unable to move, at the end of the month we went to the hospital, for a neurologic visit.

And at the end of January 2018 seizures started and also myoclonus.

Seeing her loosing all her skills so fast and without a specific reason, was terrible. Made me felt like I have lost a piece of the chain and did not understood something that brought us at that point.

After many exams and 2 lumbar punctures, EEG and Magnetic Resonance, the terrible diagnosis came out: Subacute Sclerosing Pan Encephalitis (SSPE).

Even if the typical 5-10 years between measles and the manifestation of the disease had not passed, all symptoms were compatible with this kind of chronic Encephalitis, that has no cure and it is generally fatal within 1 year.

We were destroyed by this diagnosis and I crushed by the weight of the guilt I felt. I had measles and was my fault if she had taken it.

Following months were terrible: we were not able to control seizures, she was losing muscular tone and was not able to move anymore; also feeding her was a struggle and she did not seem aware of what surrounded her anymore.

We went on feeling powerless in front of this challenge that life had put in front of us. Why God wanted us to face such struggle?

Sometimes, I was thinking: “Why her? Why me?” “What did we do for having this?” “Why can’t she have the happy life she deserves to live?”

I was angry with myself and with life and full of worries and fears. I could not believe that life, that gave me everything, could suddenly take me away everything.

There had to be a lesson to learn, and also a solution to fix everything.

I did not want to lose every hope. We had to fight for her. We could not give up.

I often remembered to myself that God don’t put in front of you an obstacle if you do not have the tools necessary to deal with it.

Here is a EEG report of March 2018:

In April, she was able to drink and eat more and gained 1 kg and also in May she gained another kg, but she still had seizures every day, many times a day, and continuous myoclonic jerks.

She could not sleep very good and there was no difference between day and night. She could sleep 5 hours in the afternoon and then stay awake all night.

Here, is a EEG report of May 2018, that still show the periodism typical of SSPE. This EEG track is related also to Myoclonic jerks.

The EEG of May was worsened and made us worry about the possibility she could enter quickly fase 3 of the illness.

We did not have any cure, since Isoprinosine, the anti-viral that is generally used for this kind of disease, is just a palliative remedy. The other thing that is generally used, Gamma Interferon (Intrathecal or intramuscular) was not a possibility for us since she was so young that sides effects could be worse than benefits.

In May, seizures slow down and happened just every 2 or 3 days but the situation was not changed.

We had to find something else for heal her.

And then, as always, when you start looking for something, God makes you find what you need.

We found dr. Oswal website and read that there was a chance for SSPE patients with his G-Therapy.

We started translating all medical documentations and tried to contact him as soon as possible to fix an appointment in Pune, in his Clinic for Life Science, Health and Medicine.

We were not able to make our daughter travel such a long distance, so decided that my husband would have gone to India with medical reports to pick up the Therapy for her.

The appointment was for the 29^th of May.

Now we had something to believe in and to hope for.

At the end of May, she had a beginning of strabismus. She was not able to control her gaze and both her eyes' movements at the same time.

The 1^st June 2018 our daughter started G-Therapy.

In 2 weeks’ time strabismus was gone. Seizures reduces gradually and stopped in the middle of June. Crying episodes as well.

Our daughter gained weight and ate better and much more. She started looking at us, and started doing some voluntary movements.

What happened in the next few months is more like a miracle.

She was still strongly hypotonic but was trying to interact with us.

Gradually, myoclonic jerks stopped in August and her gaze was more aware; she could look at us and looks at the surroundings. She seemed to be aware and conscious for the first time in months.

Then, she started moving arms and legs, crawling during sleep and then also when awake.

The 13^th of September 2018, after 3 months and half of G-Therapy, new EEG showed disappearance of periodism and of Myoclonic jerks. The track is still altered with some epileptic activity but does not show any more the typical course of SSPE.

According to her neurologist, the virus had stopped working in the brain.

From that moment on, she is going on improving her muscular tone.

She is now able to control better her neck. She cannot seat by herself but needs some help to control her back, but her muscular tone is stronger and stronger.

She can now touch things, stay seated if helped, and her neck control and neck strength is improving more and more. She is starting making some voice again, even if she still cannot speak.

Neurologist cannot explain scientifically her improvements, since she did not take any specific cure for this disease (since, actually, there aren’t).

In October 2018, after 4 months and half of G-Therapy, she is able to grab little things and keep them for some moments.
She still has some epileptic activity that can be recognise by some dystonic movements that last for 4-6 seconds but they are reducing in intensity and frequency.
At the end of November 2018, these little epileptic crisis stopped.
Her last EEG show improvements during awake even if there is still some epilepsy activity during sleep.

Physiotherapist is very pleased with her continuous improvements and now she is strenghtening her muscles and learning to stay up on her feet.
Next steps will teach her to walk and to talk.

Every day we are astonished by some new little improvement and we are now sure, with the help of God and thanks to dr. Gunvant Oswal and his G-Therapy, that she will heal completely.

It will take time, but she will.

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We are a group of parents that want to share their knowledge and their experiences with other parents of brain injured children.